Well, I am still stewing over everything that happened with our doctor and haven't been able to regroup very easily and move forward...but we have gotten Peter's first set of surgery dates for California to have his ears reconstructed so I hope that is a start ~ to move forward and quit dwelling on the past.
We leave for California on June 7th and arrive pretty late. We are taking all of the boys and my mom for help...so we aren't traveling light :)! Peter's pre-op appointment is June 8th and on June 9th (Peter's 4th birthday) we are going to Universal Studios. His surgery is Friday, June 10th ~ it is an 8 hour surgery so it will be a long day. On June 13th, Peter will have his tube removed and we are told, will feel much better. At that point, we are checking out and going to San Diego for 2 nights to visit the Zoo & Sea World...something low key that he can just sit in a stroller for. On the 15th, we will go back north to Anaheim and spend the last week in a hotel across from Disney. We bought a California City Pass which gives us access to San Diego Zoo, Sea World, Universal Studios, and a 3 day park hopper pass to Disney (both parks) so that should keep us busy for 2 weeks! We figured (well I figured) this was the only way the kids would ever get to Disney :)! Greg would never spend this kind of money to randomly take the kids to Disney in the future. He would rather take the boys to their birth place (like Vietnam or China) if it ever came to spending that kind of money on a vacation...I guess I agree, so Peter's brothers have him to thank for their trip to Disney :)! Peter will have 2 more post-op appointments (June 17th and June 22nd) and at that point, Dr. Lewin will let us know if she needs to see him again or we can just email photos to her. Either way, we are leaving on the 22nd and if needed, Greg will fly back with him for the final post op appointment and then just fly home (we are praying that isn't necessary!).
Back to Peter's atresia repair ~ we have our follow up appointment on May 6th with our Doctor here and hopefully we will have some of our questions and concerns answered at that time. As of right now, Peter's hole is blocked with dried gunk ~ I have been cleaning the outside area but can't (won't even try) to get the dried gunk that is slightly inside his ear. Other than that, everything is healing okay it seems and so far, no infections. Although, I don't know why the top portion of his ear above the hole is so swollen, I hope that decreases.
Here are a few photos...one taken today of Peter's left ear and a photo of his right ear. His right ear will be getting the Medpor first in June.
Hi Amy,
ReplyDeleteThe trip to CA sounds fun-- I think you've done a perfect job planning it out to keep the kiddie-pops entertained!
Happy to hear that Peter has not had any infections. You are all in our thoughts and prayers.
Amy- so glad Peter has had no complications. Sounds like you will have a full and exhausting June!
ReplyDeleteKeeping you in our thoughts and prayers.
Blessings!