Thursday, June 9, 2011

Post atresia repair update! (by Greg)

It’s been a while, and we’re right here in the thick of things so it’s a good time to update everyone on what’s going on.  Last post indicated how upset we were that Peter’s left ear hole was so small and appeared to be closing up before our very eyes…I don’t have to be an MD to know when a hole is not a hole, but just to remove all doubt, Dr. T (who performed the procedure) confirmed that it ain’t a hole no more (shocking).  Essentially, it has to be opened up, which could derail his ear construction surgery on that side by several months.

Luckily, the physician that is performing Peter’s right ear construction has agreed to make the modifications (i.e. make the outter hole bigger) necessary while she’s in there building him a right ear.  In the end, it’s very frustrating but it will work out for him, hopefully sooner rather than later. 

It has been pretty interesting how the U-M folks have become quite sour toward us ever since we decided not to get the rib graft surgery to build Peter’s ears, which would have required at least 10 surgeries and have forced us to wait to even begin for several years e.g. long after Peter is old enough to notice / be bothered by his situation, and long after the fraud-pedaling, politician-greasing, racketeering joint that I work for sees its “client” (CEO Barack Obama) go officially bankrupt and decline to provide half decent health insurance (or perhaps they will take one for the team – er client – and just sign us all over to Obamacare).  Long and short of it…waiting around for the U-M folks to craft ears that look like pork chops and put junior through years of painful and unsightly surgery would be completely stupid.  Yet the same people that stroll into work with 50 more IQ points than I’ll ever see and who do mostly incredible things (pork chop attachment being a notable exception) inside people’s heads can’t seem to see it.  They’ve been cranky with us lately over our decision to go vegetarian and have the Medpor procedure done.

OK – enough of the rant.  Dr. Lewin from posh Beverly Hills (as in Jed and Granny rather than 13 & Southfield, for you mitten-minded folks) will save the day, and do it before the sky falls and Peter realizes that he has yet another hurdle to overcome.  Amy had talked to Dr. Lewin several times prior to leaving for CA and was impressed and liked her more each time.   We truly feel this is the right decision for our family.
Stay tuned...
(by Amy) ~ By the way, Dr. T rated Peter an '8' on his left ear and said he wouldn't have marked down any for a 'narrow' ear canal as Dr. Roberson's evaluation stated.  Dr. T said he has opened areas with less room than he had for Peter and been successful in recovering hearing...we can only wait, hope and pray Peter is one of those people...what is done, is done.  The reason for Greg's rant above, when I took Peter for his 2nd follow up, that is when Dr. T told me the meatus (outer ear part) needed to be opened more and asked if Dr. Lewin might do it in CA (UGG, I was NOT happy about that either) when she does the right Medpor...he graciously (and was very genuine) wished us luck in CA.  When I expressed my nervousness, he said ...'well, I tried to talk you out of it'.  GEESE!  Come on!  Enough already.

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